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Regarding MS HELP?


I was just given a great answer from Nurse girl but still have questions regarding MS, I have been tested for Lyme, Gad, b12, thyroid, aids, every kind of bloodwork possiblem, still no answer, well I was given bogus answers, one said I had sever buldging discs (not true) then one said I suffer from Orthostatic tremors, stiff man syndrome, that came out neg. I have been given many Mri's which showed unspecified lesions, this new doctor is doing another mri with contrast to look more into the lesion, yes the are ruling out everything but the evoked potential test given when I read how it was done, mine was totaly different, I sat with the eletrodes on my head and just stared at a screen with black and white blocks, and that was the whole test, an hour of staring at this screen doing nothing. I have floaters in my eye, my vision has gone south at times but the falling, the pain in my legs with increase activity worsens the pain, I am desperate for answers. This has been going on now for

According to your symptoms, you could have MS. Unfortunately with MS, as with most autoimmune disorders, many people often go for many years without a definite diagnosis because
a.) No two patients are ever the same in terms of their symptoms
b.) diagnostic tests aren't 100% reliable, given this particular medical field is still quite young, and therefore the technology used is more "primitive" than in...say, cardiology

Many patients with MS go through dozens of tests before they can be offically diagnosed. Until then they have "undeterminate MS". it's frustrating because it's not a clear answer, which is of course, the one thing that patients need above all.

Until you know for sure, treat the situation as though you do have the disease or other related disorder. Avoid hot situations: baths, drinking hot beverages...etc which can worsen muscle weakness and blur vision.

Nutrition goes a long long way in MS: I know two people with MS who became fitness competitors simply because the healthy food, water and active lifestyle eased the symptoms they were feeling. I know you said activity worsens the pain you are feeling, so try to find something less stressful on your body, such as water aerobics.

Also, keep seeing specialists. see as many as you need to!

Feel better!

It's possible I have MS, but for now, my neuro (who's actually a sleep disorder specialist -- we don't have MS specialists here) has more of a wait-and-see attitude. He suggested that a vitamin b12 deficiency and myasthenia gravis were the problem, but I have only the MG symptoms that are common to MS, plus a number of other MS symptoms.

To the other excellent advice already given here, I suggest taking sublingual b12 every day. It won't cure things, but it can help halt the progression of some of the symptoms you're facing. I've been taking it now since last spring, and have had only 3 short (3 weeks or shorter) relapses since. I have a lot more energy than before, and my mood is better.

You can also try to follow the dietary guidelines suggested by the National MS Society. They offer other non-medication techniques for managing symptoms. At the very least, you can make yourself healthier and more comfortable while waiting for a diagnosis of some sort.

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